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Home > Long term conditions > Managing Long Term Conditions - Useful documents

Supporting people with Long Term Conditions
Useful Documents

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Overview 

News Update

Useful Documents 

NHS Examples

US Models

Policy

Working with Data

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Practice Based Commissioning

National Primary Care Development Team (NPDT)

Workforce Change in Long Term Conditions Programme

Events

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Policy    

The NHS Improvement Plan: Section 2: Chapter 3: Supporting people with long-term conditions to live healthy lives


Supporting People with Long Term Conditions, an NHS and Social Care Model to support local innovation and integration 


 Self Care - A Real Choice: Self Care Support - A Practical Option


 

  Publications

Action on Neurology: Improving Neurology Services - A Practical Guide 

This guide aims to help those implementing the new National Service Framework for Long Term Conditions, which focuses on long term neurological conditions.

Leaflet series - What's in it for me?

The Long Term Conditions team have produced a series of leaflets about the benefits of long term conditions work to different professsional groups.  These leaflets are available to download below: 

Managing Long Term Conditions: What's in it for GPs?

Managing Long Term Conditions - What's in it for Pharmacists?


From Chaos to Care: the promise of team-based medicine - David Lawrence, Perseus Books, 2002
Report by Matrix Research - comparison of approaches to Managing Long Terms Conditions

 "Managing chronic disease – what to do as a health and social care community - learning from Kaiser, Pfizer and United Healthcare in England"  - Matrix Research and Consultancy Ltd. Evaluative Report
 Chronic Disease Compendium of Information
Implementing the Evercare Programme Interim Report - prepared by Evercare on implementation by nine PCTs

Implementing the Evercare Programme Interim Report

Summary of the Interim Report


Adapting the Evercare Programme for the National Health - Background, Principles, Components, Pathway, Consistency with NSF, Benefits, Adapting the Model, Service
Adapting the Evercare Programme for the National Health - Leading Up to Implementation
Adapting the Evercare Programme for the National Health - The Role of the Nurse
Evercare Project in the UK - Evercare project monitoring and assessment 
Evercare Project in the UK - the National Primary Care Research and Development Centre's evaluation
Monitoring the Evercare Project in the UK - Ovations' and NPCRDC evaluation
PEC Paper 2 - Learning From Kaiser - Briefing for clinicians
The Kaiser Permanente Approach
Bob Crane
Leadership and Culture in Kaiser Sharon Levine
Patients as Partners: Improving Health and Cost Outcomes with Self-Care and Chronic Disease Self-Management David Sobel
"Learning from Kaiser Permanente: a progress report"Professor Chris Ham, Strategy Unit Director
"Getting more for their dollar: a comparison of the NHS with California's Kaiser Permanente", British Medical Journal.
The Healthwise Handbook
Chronic Care Management:Key Principles of Case Management
Pyramid of Care and potential of community pharmacy
Roles of the Advanced Primary Nurse
PEC Paper 4 United Healthcare / Evercare
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Presentations

Improving Management of Long Term Conditions - Presentation by Chris Dowse (Powerpoint)

Improving Management of Long Term Conditions - A Powerpoint Presentation by Chris Dowse (zip.file)


"The Nursing Perspective on Chronic Disease Management" - Presentation by Sally Bassett, Nurse Advisor to LTC Team from "Developing the Role of the Community Matron" conference, 27th October 2004
A National Perspective for the Evercare programme Role of the APN
Powerpoint presentation version of the Chronic Disease Compendium of Information
MA Improvement Summit 2/3 November 2004  

Chris Dowse, Modernisation Agency Programme Lead, Long Term Conditions and Victor Newman, Knowledge Works - Improving the Management of Long Term Conditions


NHS Confederation 24 June 2004 

Gary Belfield, Head of Primary Care, Department of Health

Chris Dowse, Modernisation Agency Programme Lead, Chronic Disease Management


Case Management Roadshows, June 3, 4, 9, 11 & 16 2004

Welcome Presentation, Gary Belfield Head of Primary Care

Learning from the Castlefields Health Centre - David Colin-Thome & Jayne Penny

Primary Care Contracting - a Lever for Change - Dr Philip Leech

Workshops

Advancing the NHS Plan - The Evercare Programme

Evercare - identifying the right patients – extracting and analysing the data

Evercare:Identifying the right patients – extracting and analysing the data (Gerald Lutgen)

A National Perspective for the Evercare programme Role of the APN

Roadshow pm

Commissioning for Chronic Illness Ideas for the future of NHS commissioning Noel Plumridge and Anita Maynard SE London Health Authority June 2004

The National Primary Care Contracting Collaborative – Jacquie White

Commissioning for Chronic Ilness – Noel Plumridge & Anita Maynard

COPD & Diabetes in Primary Care – Barbara Edwards

Commissioning for Chronic Disease Management, Roy Paterson, NatPaCT

National Primary Care Collaborative Phase III Wave One Chronic Disease Management - David Latham Assistant Collaborative Director

Plenary Session – Gary Belfield


National CDM Event 18 May 2004

Full Conference Report

Managing Chronic Conditions: An International Perspective - Rafael Bengoa, WHO

Chronic Care In America - Gerard Anderson

Chronic Disease Management and the UK - Looking to the Future - Sue Roberts, National Diabetes Czar,

Disease Management or Life Management? - Harry Cayton, Director of Public and Patient Involvement

Evercare Programme: Chronic Disease Management and Redesign of Primary and Community Services - Alistair Howie, Chief Executive, Walsall

Team Health: A Vision for Chronic Disease Management in Haringey -Gerry Taylor, Deputy Director of Health Improvement, Haringey PCT


Learning from Kaiser 4 November 2003

Summary of John Reid's speech

The Kaiser Permanente Approach Bob Crane

Leadership and Culture in Kaiser Sharon Levine

Patients as Partners: Improving Health and Cost Outcomes with Self-Care and Chronic Disease Self-Management David Sobel

Online recordings of these presentations


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Useful Examples

North East London Managing Long Term Conditions Collaborative Newsletter - The North East London Managing Long Term Collaborative have started producing newsletters giving news and information about managing long term conditions in North East London.  Further information can also be found on their website - www.nelondon.nhs.uk/ltc

Click here to download January 2005 edition 2 of the newsletter

Click here to download October 2004 edition 1 of the newsletter


Eldercare Project in Cornwall (EPIC) - This project has been in operation since July 2004 and is one of several Modernisation Team projects currently being run in Cornwall to reduce unplanned hospitalisation and increase capacity in community services.  The principle objective of the project is to manage proactively the health of people aged over 75 who have a chronic disease and repeated, unplanned hospital admissions.

Click here to download EPIC First Quarter Evaluation Report

Click here to download Case Studies of EPIC patients

Click here to download EPIC Case Study (in-depth)


Essex SHA Strategic Framework for Case Management of Long Term Conditions - Essex Strategic Health Authority have prepared a strategic framework for the management of long term conditions.  This builds on the Department of Health model in a way which is specifically relevant to Essex SHA, and provides useful additional information for SHAs working on their own strategic frameworks.
Improving management of long term conditions - a case management approach in Bristol and South Gloucestershire - North and South Bristol and South Gloucestershire PCT’s were among a number of pilot sites who implemented a case management approach using the Evercare programme of care for frail elderly members of the population. This document outlines the implementation and evaluation of case management across Bristol and South Gloucestershire and provides information on why the case management approach was seen as a method to improve the quality of care for patients with multiple chronic conditions.
Surrey and Sussex newsletter - Surrey and Sussex SHA have produced a Transforming Chronic Care newsletter. They describe the newsletter as 'for everyone involved in the planning and delivery of all aspects of the programme'.  The newsletter gives useful background on improving care for people with long term conditions and how the Surrey and Sussex healthcare community are going about it.

Transforming Chronic Care Programme - Surrey and Sussex SHA - Presentations from events


Castlefields Health Centre: Approach to case management - Castlefield Health Centre’s approach to case management has excited a lot of interest – and enquiries. They have prepared a detailed account of their work, and powerpoint to answer these – and let them get on with the day job of healthcare:

Castlefields Health Centre Report (word.doc)

Learning from the Castlefields Health Centre - David Colin-Thome & Jayne Penny (Ppt)


Reforming Health Systems: Applying the lessons from Managed Care Conference Report from Hampshire and Isle of Wight PCT Chief Executive Community
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Tools and Templates

A 'rough guide' to co-designing services for Long Term Conditions
The Engaging Communities Learning Network have developed this 'rough guide' from a series of workshops held early in 2005 which looked at making the connections between long term conditions and patient and public involvement.


Self-Assessment Tool for Managing Long Term Conditions

The Long Term Conditions team have produced a Self Assessment Tool to help health and social care organisation and communities.  The self-assessment tool will identify areas of progress within LTC, key gaps, ‘quick wins’ and longer-term goals.


Evercare:Identifying the right patients – extracting and analysing the data (Gerald Lutgen)
Chronic Disease Management: Population Management (Pyramid)
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Useful Links    

Evercare website (US)  
UnitedHealth Europe - introduced Evercare Programme into 9 PCTs in England in 2003  
Kaiser Permanente  

Chief Nursing Officer's site

 

Changing Workforce Programme

 
Improving Chronic Disease Management - DH article
Self Care Website (DH)  

National Diabetes Programme

 
Coronary Heart Disease Collaborative  

Cancer Services Collaborative Improvement Partnership  

 
Expert Patient Programme   
EQUIP - Electronic Quality Information for Patients Gateway to quality health and social care information for UK patients, their families and carers. 1600 support groups and organisations are checked every 12 months.West Midlands based but much useful national info.  
DIAL UK a national organisation for a network of 160 local disability information and advice services run by and for disabled people. 
The Disabled Living Foundation national charity which provides impartial information and advice on disability equipment to help solve the day-to-day problems that arise through living with a disability.  

  

  

     

  

    

 

    

 

 


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